
Fifteen years ago, everything changed for Mckenna Lumley.
At just four years old, Lumley was diagnosed with a juvenile benign pilocytic astrocytoma (JPA), a rare childhood brain tumour.
Her family started to notice something was off when she was in the bath and unable to move her head back. This limited mobility progressed into her screaming due to neck pain and vomiting. While doctors were convinced Lumley was suffering from a flu bug, her mother, WE-SPARK assistant director Karen Metcalfe, knew something more was going on.
After some tests to further investigate, they received the news.
“My mom was roasting beets in the oven — I remember this because she hasn’t since — and she got the phone call saying, ‘She has a giant mass in her cerebellum. You need to get her to the hospital. We’re sending her to the Children’s Hospital in London,’” Lumley said.
While she doesn’t remember much about that time, she does recall the ambulance ride, the mirrors along the walls as she was wheeled down the hallway, and the glitter wand she was given — something she still has to this day.
“After surgery I was in the hospital for several weeks. Because of where the tumour was, I had to relearn how to walk, how to talk, all of that,” she explained.
Before she went into surgery, Lumley’s parents asked the doctor what they should expect. The doctor’s answer? “Well, I wouldn’t expect her to be a ballerina.” But she’s been dancing ballet for 10 years — and has been beating the odds ever since.
Lumley has been a longtime advocate and philanthropist for others with brain tumours, raising funds for research by selling bracelets in the third grade and founding Glitter Glam: Tattoos for a Cause, a flair tattoo initiative she ran for the next four years.
She was involved with the Brain Tumour Foundation of Canada for many years and wrote and illustrated a self-published children’s book, with a portion of the proceeds going to the foundation.
Now, Lumley is working with the Windsor Cancer Centre Foundation to raise money for local brain tumour research as part of Connecting for a Cause.
Throughout the month of May, which marks Brain Tumour Awareness Month, she and others have been raising money leading up to an in-person event on Friday, May 30, where they will celebrate their collective efforts, meet local researchers, tour laboratories and connect.
Lumley’s team, the Pirates of the Cerebellum, has so far raised $9,930 of the event’s $25,000 goal. Those looking to get involved can still donate to the cause at canadahelps.org.
Reflecting on her story and her life over the past 15 years as a survivor, Lumley notes she is one of the lucky ones — a perspective that really drives her advocacy.
“I am what people hope for. I am the ideal outcome,” she said. “I am what I hope research eventually gets to for everyone who has a brain tumour.
“I want research to get to the point where I am not the one per cent — where I am just the standard baseline. Especially for benign brain tumours that are operable.”
Still, Lumley’s journey has not been without its challenges. Having had brain surgery at such a young age, she has struggled with certain subjects in school, particularly English and writing. But once she accepted her accommodations, she began to thrive and has since found her place in the creative arts.
Now a third-year School of Dramatic Art student, Lumley continues to share her story — most recently through a play titled Inheritance, which debuted at the Student Works Festival and explores her experience with her brain tumour.
“The arts beg for unconventional thinkers, and by nature of having had a giant mass in my brain, kind of makes me an unconventional thinker,” Lumley laughed.
She credits her mom, family, teachers and members of the local brain tumour community as key supporters throughout her journey and in her advocacy.
Connecting for a Cause will host its celebration on Friday, May 30 at the University of Windsor’s Essex CoRe building from 5 p.m. to 7:30 p.m. For more information visit Connecting For A Cause Canadahelps